Hello everyone,

​

my name is Nadine, I am 39 and a single parent from Kiel/Germany.

My little 6 year old daughter Evelyn suffers from an extremely rare and severe, drug resistant epilepsy.

Since a general anesthetic at her 6 weeks of age during a surgery (hernia), she has uncontrolled grand mal seizures, lasting up to 20-30 minutes, 4-5 times a day. She also has unmotivated movements (so-called myoclonies) non stop.

This is because her brain never had the chance to develop. Evelyn could never learn to sit, walk, to hold her head or even speak.

We have been tried more than 15 drugs, but there is no therapy to treat her seizures.

We frequently spent long periods of time in hospital and still do. She easily suffers from pneumonia because of her weakened immune system. Last year she was taken seriously ill and almost died of a severe pneumonia.

Evelyn is the most precious thing i have. We are deeply connected and understand each other without speaking a word.

The time we spent together means everything to me.

But because of her serious illness, I could not care for her alone at home, so she now lives in a residential care group since a few month. I take her home at the weekend, to have a normal family life with her. 

Unfortunately my old car now is broken down.

But we´d be in a fix without a car, because I would not be able to take Evelyn home or to kindergarden, to the doctors or to therapies. Even trips to friends, to the beach or even to the supermarket would be impossible.

She needs to be transported in her wheelchair.

This is why we need a handicap-accessible van with a lifting ramp. A back seat is needed to put on her diaper and to lay her down safely while she is having the seizures.

Please help us to take part in daily life again.

We would like to give a heartfelt thank to all of you out there who wants to help me and Evelyn.

We wish you a happy and healthy new year.

Take care.

Nadine&Evelyn